Evie is 2 days old!!!!
Hi Friends and Family! Well... miracles happen!!! (: Evie is living up to the meaning of her name..... "life." We had a long weekend, delivering Saturday at 6:37 (after only 3 pushes! answered prayer!). She was loved, prayed over, and passed around to meet family and friends. Sunday morning she had a rough night, labored breathing for a few hours, and we still thought she had the initial diagnosis of lethal OI. We would look at each other with tears in our eyes every few hours and say, "wow, we've had 2 hours." "wow, it's been 4 hours" and now that it's been over 48 hours I feel showered in God's grace and loving kindness with a whole list of answered prayers, thank you friends!!!
Hi Friends and Family! Well... miracles happen!!! (: Evie is living up to the meaning of her name..... "life." We had a long weekend, delivering Saturday at 6:37 (after only 3 pushes! answered prayer!). She was loved, prayed over, and passed around to meet family and friends. Sunday morning she had a rough night, labored breathing for a few hours, and we still thought she had the initial diagnosis of lethal OI. We would look at each other with tears in our eyes every few hours and say, "wow, we've had 2 hours." "wow, it's been 4 hours" and now that it's been over 48 hours I feel showered in God's grace and loving kindness with a whole list of answered prayers, thank you friends!!!
Long story short... after a good day Sunday, x-rays, genetic counseling, seeing our pediatrician, perinatologist, and a head ultrasound, Evie no longer has a life threatening diagnosis at all. She still has a skeletal dysplasia (disorder), we aren't sure which one, and what her specific prognosis and treatment will be, but she is doing amazingly well. The important things are all in place, a normal sized rib cage, healthy developed lungs, a strong heart, normal brain ultrasound, etc. Praise God. She has started bottle feeding, and is doing great.
I can't thank you enough for your diligent praying for Evie. I can't wait to take her around town and show her off. Praise God, the Great Physician for delivering her through the valley that we were in just a few days ago. There is no doubt in my mind that whether she initially had OI or not, God healed her body, and he's not finished using her in miraculous ways. Her life is a testament to the power of God and his love for his people.
We just got to tell Lyla today for the first time that baby Evie was going to come home and live at our house, it was one of the best moments of my life. Lyla gave us the okay, and even helped change a few diapers. I am happy to report that she knows poop is "brown"... we have really been struggling with our colors and it put a smile on my face.I could go on for hours, and I'm sure I'll get all the details out eventually, but for now let's PRAISE GOD for answered prayers, healthy kids, lives changed, and the power that comes from Him alone.Love,Lindsey, John, Lyla, AND Evie !!!
Posted by Lindsey at 7:21 PM
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